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- National Organization for Rare Disorders | NORD
It is the foundation upon which NORD was built NORD works with partners in the patient community, government, academia, and industry who share the ultimate goal of identifying, treating, and curing rare diseases In addition to the partnerships listed below, NORD works with many national partners to achieve its advocacy goals
- Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it
- About Us - National Organization for Rare Disorders
NORD was founded after the passage of the Orphan Drug Act of 1983 (ODA) to formalize the coalition of patient advocacy groups that were instrumental in passing that landmark law Since then, NORD has been a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported, and connected
- List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM)
- Rare Diseases Support, Resources Help | NORD
Other helpful resources include NORD’s state-insurance map, which provides state-specific resources related to health insurance, as well as resources offered by the Patient Advocate Foundation and Henry J Kaiser Family Foundation’s StateHealthFacts org
- About NORD Membership Network | NORD - National Organization for Rare . . .
NORD’s Membership Network is composed of a diverse array of patient organizations that are working together to raise awareness around rare disease
- Living with a Rare Disease | NORD
By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media “Your Content” must be your own and must not invade any third‐party’s rights
- Narcolepsy | Narcoleptic Symptoms, Causes, Treatment | NORD
NORD gratefully acknowledges Mary C Kapella, PhD, RN, Assistant Professor Biobehavioral Health Sciences and Interim Director Center for Narcolepsy, Sleep and Health Research (CNSHR), and David W Carley, PhD, Professor of Biobehavioral Health Sciences, Medicine and Bioengineering, University of Illinois at Chicago, for assistance in the
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